The focus of this day should be how incredibly F*CKED UP everything in stroke is.
The whole focus on F.A.S.T. is complete false advertising. tPA is given to maybe 5-10% of those eligible and of those that get it it works to completely reverse the stroke around 12% of the time. It probably will save your life like it did mine but truthfulness about this wouldn't make people feel good about the stroke associations. I consider the stroke associations a major part of the problem. No acknowledgement of the problems and deflection to news of reduced deaths by stroke which has almost nothing to do with them.
0. There is no fast, easy and objective way to diagnose a stroke.
Thornhill woman’s “stroke selfie” goes viral It was the second attack in two days — the first time she was sent home after being treated for stress.
Ohio hospital settles stroke misdiagnosis lawsuit
Pediatric Stroke Often Misdiagnosed, Treatment Delayed
Doctors tell boy, 15, he had a migraine after rugby tackle - but he was actually suffering a paralyzing stroke which nearly killed him
Factors Associated With Misdiagnosis of Acute Stroke in Young Adults
Investigation as Stafford Hospital - England - fails to spot stroke
"Weekend effect" seen in large stroke study
Amy on her 36 hour wait for a diagnosis.
1. tPA may save your life but only has a 12% efficacy for full recovery.
2. Your neurologist doesn't have any concrete stroke protocols to save all the neurons that are dying in the first week. The neuronal cascade of death is occurring in full force and I bet your doctor doesn't know about it and is doing nothing to stop it.
Like these 31 hyperacute possibilities
3. Your neurologist or physiatrist doesn't have any clue about how to get you to full recovery. (Ask them exactly how to do it), you'll get excuses.
4. Only 10% get to full recovery.
5. No protocols to prevent your 33% chance of getting dementia post-stroke.
6. Nothing to alleviate your fatigue.
In one study, two years after their stroke 10 per cent of stroke survivors said they were always tired and 30 per cent said they were sometimes tired. In another study, at least 12 months after their stroke, 50 per cent of stroke survivors said tiredness was their main problem.
7. Nothing that will cure your spasticity.
Spasticity following a stroke occurs in about 30% of patients
8. Nothing on cognitive training unless you find this yourself.
9. No published stroke protocols.
If there are any out there I haven't found them.
10. No way to compare your stroke hospital results vs. other stroke hospitals.
Everything in stroke is a complete failure. And that should be the focus of the World Stroke Day, not the feel good crap you are going to hear.
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 29,160 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke. DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
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