Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, August 22, 2018

Help Shape the Future of Parkinson's Research

Because we have NO stroke leadership and NO stroke strategy nothing like this will ever occur until survivors are in charge. You, your children and grandchildren are screwed if they have a stroke.I suppose you could ask the presidents of the ASA, NSA and WSO what they are doing but since they have no survivor input that is worthless.
http://view.michaeljfox-email.org/?qs=6a8b5d92c46bac89b2a780a1647e5be32a42b687d1e1c2395838864fabd00853878a67e3a74a5ef73ea18c937cef12c1661757808775f21dee1abffa4151a997dd481a606870d344c7f03b74af4a6968
Last fall, The Michael J. Fox Foundation for Parkinson's Research (MJFF) and 23andMe announced Fox Insight (foxinsight.org) -- a groundbreaking collaboration to build a large, diverse cohort of Parkinson's patients and control volunteers providing researchers with critical insight into the lived experience, genetics and variability of Parkinson's disease.

More than 23,000 participants are now taking part in this online study and helping create the most holistic picture of Parkinson's disease ever assembled. But Fox Insight is just getting started. It is open to anyone 18 or older worldwide, with or without Parkinson's disease, and aims to recruit tens or even hundreds of thousands of patients to contribute data.
Take Part

The more participants who take part, the faster the study could lead to new understanding of disease and potential new treatments.

Fox Insight needs you. Visit foxinsight.org today and be part of amplifying the patient voice in research and care to illuminate potential new pathways to breakthroughs.

P.S. If you're already enrolled in Fox Insight, thank you for sharing your experiences and helping to shape the future of Parkinson's research!
               

This email was sent to oc1dean@gmail.com

This email was sent by:
The Michael J. Fox Foundation
Grand Central Station, P.O. Box 4777
New York, NY 10163-4777
1-800-708-7644
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