Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, October 30, 2024

World Stroke Organization Launches Global Coalition to Drive Policy Action on Stroke Care

 This is how fucking godawful the WSO is. Ignoring what survivors want; 100% recovery and talking about 'care'! Schadenfreude should hit everyone in the WSO  when they become the 1 in 4 per WHO that has a stroke and they start complaining about not getting recovered. I don't even know why they have stroke in their name, they DO NOTHING FOR SURVIVORS!

World Stroke Organization Launches Global Coalition to Drive Policy Action on Stroke Care

 On World Stroke Day, October 29, the World Stroke Organization (WSO) announces the launch of a global coalition aimed at accelerating policy action on stroke—now the second leading cause of death and the third leading cause of disability worldwide.

Over the past three decades, the global burden of stroke has doubled. Stroke's impact is expected to increase by one-third by 2050. This rise could result in 9.7 million annual deaths and a significant increase in those affected by stroke-related disabilities. Beyond the immense human toll, stroke is projected to cost the global economy over USD 1.6 trillion annually by 2050.

“There is a clear misperception of stroke as an unavoidable, age-related condition with limited treatment options,” said WSO President, Professor Jeyaraj Pandian. “Evidence shows that stroke is increasingly affecting younger populations, with 80% of all cases preventable. Expanding access to acute treatments - which only 5% of eligible patients currently access - can transform patient outcomes, while specialist rehabilitation can enhance recovery and social reintegration. Not only is stroke largely preventable, it is treatable and beatable.”(NO, it's not, you have zero evidence for that statement!)

In September 2025, Heads of State, Ministers of Health and Finance, and development stakeholders will convene in New York for the fourth UN High-Level Meeting on Non-Communicable Diseases (NCDs). With only five years remaining to SDG 3.4 on reducing premature mortality from NCDs, this gathering presents a critical opportunity to drive commitment to policy interventions and investment in stroke.

“Around the world we can see the huge gaps in stroke care(NOT RECOVERY!) at every stage in the patient care(NOT RECOVERY!) pathway. Each of these gaps represents enormous potential for progress. Action on stroke really is the key to accelerating progress on health and development goals,” said Prof Sheila Martins, co-Chair of the Coalition. “WSO’s network of global and national experts stand ready to support governments develop and implement stroke care(NOT RECOVERY!) systems that will help reduce their burden of disease.”

The stroke advocacy coalition, comprising health and scientific, patient organizations, and industry leaders, is united in its mission to drive engagement with decision-makers at all levels ahead of the 2025 UN meeting. For details of current members visit https://tinyurl.com/44wbp8pb

Notes for editors

1 The World Stroke Organization is the world’s only global NGO with a sole focus on stroke and in official relations with the UN. It is committed to reducing the global burden of stroke through advancing access to effective prevention, treatment, rehabilitation, and support. WSO is a membership organization and represents over 50,000 stroke experts in every global region. WSO’s 100 Society Members represent international, regional and national scientific, medical and patient organizations.

2 More information on stroke burden and recommendations for policy makers can be found in The Lancet Neurology – WSO Commission on Stroke https://www.thelancet.com/commissions/global-burden-stroke

3 WSO policy recommendations for implementation of effective acute stroke treatment can be found in Time for a Revolution in Stroke Care(NOT RECOVERY!)

For more information, contact the WSO Campaign Manager awiseman@world-stroke.org +44 7940 029444 

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