If you are a Canadian survivor contact them and ask to be involved in strategy setting and goals of the trials. Each trial should summarize the current state of the area of the clinical trial, what old research has been superceded, how survivors can use the information learned to recover. This is light years ahead of anything in the US and we supposedly have two stroke associations, the ASA and NSA.
http://www.canadianstroke.ca/en/news/building-capacity-for-stroke-clinical-trials-in-canada/
We are building capacity for
stroke clinical trials in Canada. Learn more about the efforts of
CaSTOR, an initiative of CPSR and the Canadian Stroke Consortium, by
reading our September newsletter: http://eepurl.com/cagPpT
The newsletter includes
information about a the first meeting of the newly created Clinical
Trial Coordinators network, the CPSR training program, the CSC’s
Knowledge Break, videos on the stem cells and stroke recovery, and more.
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 29,294 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke. DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
Saturday, September 10, 2016
Building capacity for stroke clinical trials in Canada
Labels:
ASA,
Canada,
NSA,
strategy,
stroke association
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